Update: 05.08.2017

Dearly beloved, for now Stefania Erica's investigation is over. The total bills cost 1292 Euros, and the difference of 2.108 Euros will be directed to the treatment of Irina Florea, at the choice of the family! Thank you so much for your support!

Campaign started on: 29.07.2017
Name: Eica
First name: Stefania
Age: 2 years and 9 months
Amount required: 6,000 Euro
Diagnosis: Bourneville Syndrome (Tuberous Sclerosis)

Detailed analyses will be carried out at the Koc University Clinic

Thestory of little Erica Stefani

Stefania is the wonder that put their heart on the Enica family's jar. At the age of four and a half months, the cries were no longer... and my mother detected the first seizures. They rushed to Braila County Hospital, where they stayed one night, then in the morning they were transferred to Obregia Hospital in Bucharest. He did an EG, which didn't look too good, and started treatment with Synachten injections.

They thought it was a regular epilepsy and he'd get away with it. He also recommended an MRI, where nothing was seen at the time. Apparently, the seizures stopped from the first injection. After completing the treatment regimen, which lasted 1 month and a half, the miracle lasted only 2 months without seizures and then they reappeared. They started a new treatment that they procured from Spain, namely Sabril 500 mg sachets (the girl was 8 months old at the time). And this time the miracle lasted only six months, then the seizures reappeared. Her eyes were suddenly red, teary, Stefania was looking for support and had a specific chew of her mouth. Sometimes she was conscious, sometimes she wasn't. It develops normally in every way. Although we were recommended to raise the dose of drugs, it did not work and at 1 year and 3 months, the 3rd drug - Depakine syrup .

After a few days of administration, Stefania no longer has seizures and easily removed the drug Sabril from the treatment. After 5 months of treatment, seizures recur in the same way (sometimes lasted 20 seconds, sometimes 40 seconds). There were four times a day. An MRI followed at 1 year and 10 months and from there they left with the diagnosis of tuberous sclerosis (Stefania had a lot of tubes on her brain). After the seizures, the doctor told them it was possible to start the crisis from a single tuber. The wonder of Depakine syrup lasts 5 months, the seizures reappear and introduce another drug - Timonel syrup and remain on the 2 drugs. Reacts after a few days, Stefania no longer has seizures; but also this time, it has effect 4 months and seizures reappear.

Slowly, slowly, we take in turn other antiepileptics: Lamictal, Rivotril and Topiramate tablets. Since November 2016, crises have not been able to stop them. They had another 3rd MRI (28.03.2017), when Stefania was 2 years and 5 months old. They tried any medicine he prescribed, but it was all for nothing.

Desperate, they arrived at a clinic abroad, recommended another drug, but the little girl was having bigger and longer seizures for almost three minutes. At present, take 4 drugs and resume Sabril sachets. Liver samples are down, even in a lifetime a man doesn't swallow as many drugs as little Stefania swallowed at just 2 years and 9 months. All her parents and brothers want is for Stefania to live a normal life, get rid of seizures and be able to go to kindergarten, to school, to get married, to have children and to live a happy life!

The child is expected on Sunday (July 30th) in Istanbul, at the Medical Park Clinic, where she hopes to find out where these seizures occur and what is the best treatment for her recovery!

Donations can be made:

Entity Name: Association "SALVEAZA O INIMA"

Tax Registration Code: 31015982

Bank Account (IBAN):

Account RON: RO 05 BTRL 0070 1205 W828 70 XX

Euro Account: RO 28 BTRL EUR CRT 00 W828 7001

USD CONT: RO 68 BTRL USD CRT 00 W828 7001

SWIFT CODE: BTRLRO22

BIC CODE: BTRL

Banca Transilvania Botosani

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