Campaign updates

17 Mar

2021-03-17

02 Mar

2021-03-02

We have news about the evolution of little Nicolas, manages for 1 minute to stand alone in the butt and rolls on the tummy.

Campaign started on: 16.02.2021

Name:Stefana

First name: Nicolas

Age: 1 year

Amount required: 18403 euro

Diagnosis:: Spinal Muscular Amyotrophy type1 (SMA) required for medical devices : bipap ,coughassis,pulsoximeter,humidifier

Treatment will be performed at Victor Gomoiu--Bucharest

Nicolas's story

A year and almost a month ago, a young mother took her little boy in her arms for the first time after a long wait. Alina Ştefana only held Nicolas after 43 weeks and 3 days, the pregnancy being caused by doctors because she had overtaken the deadline.

The untold joy for the whole family was overshadowed by the gynecologist just two days after the birth.

I think your drinkis suffering from a rare disease,andIdon't wantto be true.b>and Doctor Sandu Magdalena,told the doctor to the new mother.

Unfortunately, the suspicion turned out to be real. Nicolas Ştefana suffers from hospital amyotrophy type 1, a condition characterized by progressive muscle weakness.

Ifelt that he ran awayfrom me, Isaid,and I didn't wantto thinkit wastrue. .. We-we admitted to make all the tests possible andimpossible andall at the sametimen> cut thefirst treatment thatiscalledNusinersen (Spinraza), administered in the spine, prhymes 3 doses at intervals of two weeks,4-at the interval of onemonth,then every 4 months, told us with tears in her eyes theyoung mother, desperate to save her little boy's future.

Nicolas's disease is not only rare, but also extremely expensive as a treatment. In order to breathe, the baby needs machines, which cost well over what a modest family with two children can afford: 18,403 euros. The two young parents live from 3,300 lei a month with the allowances of the little ones.

I askyou from the bottom of myheart tohelpNicolas have a beautiful child. ofhis brother'sfather,Luca, 3 years old! "Thank you- nice andgood people- that you arewithus inthe hardest moments,saysAlina, who begs us to lend a hand to Nicolas' life.

Any donation made in the accounts of the "Save a Heart" Association will ease the Stefana husbands' financial burden on Nicolas' illness. The poor little boy faces a hard life, but it can be changed for the better through our support, by any amount that will be raised for him, for his recovery, for the chance of a better future.

Only together will we also help this innocent soul to walk into life with joy, hope and confidence that the goodness of men can work wonders!

Donations can be made:

Entity Name: Association "SALVEAZA O INIMA"
Tax Registration Code: 31015982

Bank Account (IBAN):

RON Account: RO05BTRL00701205W82870XX

Euro Account: RO28BTRLEURCRT00W8287001

USD CONT: RO68BTRLUSDCRT00W8287001

SWIFT CODE: BTRLRO22

BIC CODE: BTRL

REVOLUT: 0752,753,540

Banca Transilvania Botosani

Please specify for bank transfer the name of the child -STEFANA NICOLAS