Campaign updates

17 Jul

2020-07-17

Brothers. Noel was able to collect financial coverage for the treatment of genetic therapy.
Thank you to those who have contributed in any way to Noel's help!

10 Mar

2020-03-10

Hello, our dears! It's the most anticipated moment of the week, the publication of the balance sheet! 😇

Here are the figures from last week, more than 77826 euros have been raised! It's the second week in a row that so many moneys have been raised in our little one's account. 💕

This confirms to us that the whole engine of this campaign is in this group and that the only way to get to the final amount is to increase the group to 100,000 members.

It's so simple, and the numbers speak for themselves. Since the number of members doubled, the amount of donations has doubled, the auctions have increased, you have mobilized fantastically. Behold, your efforts are visible and we thank you on this path. 👏

Now that we have proof of our power to fight together, it is clear that only by increasing the group will we be able to hasten the raising of the money needed for Zolgensma. The power to save Noel lies in every one of us, from now on it's all so obvious...

Keep adding people, writing to public figures and telling the world about Noel, and that's how we'll be able to give him his best present: life! 😘

03 Mar

2020-03-03

Since a while, Monday has become for us the most anticipated day of the week... Ironically, because people don't usually like Monday...
But since Monday brings us good news, we've all been waiting for the week's figures to be blown.

Dearly beloved, I am pleased to announce that today, donations from Noel's accounts amount to EUR 734,329

It is very important that the flow of donations is constantly increasing from week to week, so we encourage you, every week, to invite your friends and acquaintances to join us.

If we managed to keep it that way, very quickly we would reach the final♥️ there would be this race against time ...
My worst nightmare is that we're going to have to fight time... And the biggest dream that Noel will be able to receive on his birthday (in July) the most beautiful gift : the chance to a normal life

Campaign started on: 24.02.2020

Name: Noela Robert

First name: Olyus

Age: 7 months

Amount required: 1500,000 euro

Diagnosis: Spinal Amitromy Type 1 (SMA)

Clinic where he will perform the injection: USA

The story of little Noel

I'm Noel, and I thought I'd tell you a little bit about my illness, because I've seen that many wonder what SMA -1 is?
The disease is called spinal muscular amyotrophy, a degenerative condition with autosomal genetic transmission recessive that affects neurons in the spinal cord, often also those in the brain stem, leading to their death with loss of muscle mass and decreased strength..... That's how I heard the doctors said...
Of the existing types of MAS, they diagnosed me with SMA-1.
This is the most severe form in terms of evolution and prognosis. The onset is before the age of 6 months. Children diagnosed with SMA-1 cannot hold their heads, if they are seated, fall forward. Their limbs can be passively mobilised with great ease
Children with SMA-1 will never be able to stand, walk or run with other children. I've heard the adults talk that I need a lot of machines, too, because in a short time I won't be able to breathe on my own, I won't be able to cough or even be able to swallow because of muscle damage.. .. I only dread when I hear these things... SMA-1 is the most severe form of the disease, with most patients dying by the age of 18 months due to respiratory failure. That's what I heard from the gentlemen doctors my parents took me to heal me.
They said I'm kind of lucky, because I'm getting a treatment called SPINRAZA. My mom told me that SPINRAZA would help me for now and that it would be easier for me...
There are four doses of injections that I need to take first. The first three are done every two weeks, then between the third and fourth a month passes, then they are done at four months for the rest of their lives. It is a puncture in the column, remove five millilitres of liquid from the column and insert five millilitres with this treatment.
I believe my mommy, because I know she loves me so much, and she would never lie to me. I'm sure I'll be better... That's what my mother promised me...
But I've heard the big people talk around me that there's another treatment that would help me be like all healthy kids.
It's called ZOLGENSMA... I simply call it "SPERANCE" because it's my chance at a normal life. But it costs a lot of money... $2.1 million. I'm still small and I don't know what that means, but it has to be a lot, because my parents always tell me that they'll give anything in the world to buy me this medicine.
I also know that in order to raise the money for treatment, my parents also asked for the help of unknown people... How much they must love me if they did this for me...
I see my mother every day getting tireder and sadder. But when he takes me in his arms in his arms he always smiles... I smile too, because I want to see her happy.
I firmly believe that one day I will be able to thank him for everything he's doing now for me...
Now that I've told you about my illness, please support me in my battle with the unrelenting disease called SMA-1, and help me fulfill my dream... To be able to live.... With those who love me...
If you have the opportunity you can support me financially in the bank accounts that my parents opened for me.
But I'm also very grateful for any share...
Don't forget to thank God every day if you have your loved ones close and you are healthy
It's the greatest treasure on earth. That's what I already know... Although I'm only 4 months old.

You can still support Noel as far as possible:

Entity Name: Association "SALVEAZA O INIMA"
Tax Registration Code: 31015982

Bank Account (IBAN):

Account RON: RO 05 BTRL 0070 1205 W828 70 XX

Euro Account: RO 28 BTRL EUR CRT 00 W828 7001

USD CONT: RO 68 BTRL USD CRT 00 W828 7001

SWIFT CODE: BTRLRO22

BIC CODE: BTRL

Banca Transilvania Botosani

Please specify the child's name (Noel).