Campaign updates
2024-11-26
The Save a Heart Association paid today the amount of 8000 RON representing medical recovery according to the attached payment order.
Our fight continues!
Thank!
2024-11-13
The Save a Heart Association paid today the amount of 675 EURO representing medical recovery according to the attached payment order.
Our fight continues!
Thank!
2024-10-10
The Save a Heart Association paid today the amount of 10000 RON representing medical recovery according to the attached payment order.
Our fight continues!
Thank!
2024-10-08
The Save a Heart Association paid today the amount of 975 EURO representing medical recovery according to the attached payment order.
Our fight continues!
Thank!
2024-09-23
Since Teodor was diagnosed with Duchenne Muscular Dystrophy, our life has turned into a constant battle between hospitals, recovery centers and numerous investigations. We feel overwhelmed, because, in Romania, there is no treatment for this devastating syndrome. But a ray of hope appeared from Spain, more precisely from Barcelona.
In November 2023, I arrived here, and since then Teo has done all the necessary investigations. With great efforts, we managed to enter the public health system, where he was given more detailed checks. The final verdict was clear: Teo must stay here in Barcelona to benefit from a revolutionary vaccine that can stop the progression of the disease and help him keep his muscles functional. Until he receives this life-saving vaccine, he has been recommended intensive care to keep him in the best possible shape and to protect him from pain.
Unfortunately, for us, the costs are huge: the therapies reach 1500€ per month, and the rent to about 2000€. We have exhausted all our savings, as parents, doing everything in our power to help Teo. But now, we are facing a desperate situation. In order for Teo's condition not to suddenly worsen, we must stay here, in Barcelona, and continue these vital therapies.
Please help us keep our hope alive and continue the treatments that give Teo a chance at a life without suffering! Any support matters enormously in our fight for our son's health.
2022-06-09
So far, ultrasounds of the lungs and heart are good. The X-ray on the column is also good.
I started physical therapy - two days a week. Tomorrow we will meet with the doctor who has taken measures for us for orthotics, we see what he will tell us. The important thing is that we are in a database and as soon as a treatment appears we are notified. It's already an exepriment that can be applied in America, in Europe still not. We pray to the good God to approve it here as soon as possible. From what we have learned, the Hospital "Sant Juan de Deu" will be the first in Europe to use it. We'll be back with information.
We still don't know the schedule for next week.
(Iulia Radu, Teodor's mother)
2022-05-31
Since yesterday I started my first visits with Teo. He was very excited to experience every part of the hospital, from today we continue...
Thank you to everyone who supported Teo! Unfortunately, the disease evolves very rapidly. 3 months ago it was still going quite well, but already difficulties are observed in walking. There is no cure anywhere in the world for Duchenne muscular dystrophy, at the "Sant Juan de Déu" Hospital in Barcelona, a treatment is being experimented upon after it has been shown in the US that it can slow down the course of the disease. These children remain in a database and when Spain also recognises the treatment, they will be able to benefit from it in the future.
I want to believe that we can avoid getting into the wheelchair, to how the disease evolves would be the next step. Teo will still need financial help for orthotics, which are not included in the original bill.
Please continue to be with him. Eternally grateful, I hug you with love! 🙏❤️
(Iulia Radu, Teodor's mother)
Campaign started on 05.05.2022
Name: Radu
First name: Teodor Andrei
Age: 8 years
Required amount: 10,000 euros
Diagnosis: Duchenne muscular dystrophy
The treatment will be carried out at: Hospital "Sant Joan de Deu", Spain
Theodore's story
He got tired very quickly, he wanted a lot in his arms, he didn't run and he always limped a leg. We went to various orthopedists who told us that everything was fine and we didn't have to worry...
Thus begins the story of Teodor Andrei, an 8-year-old boy, for whom life offered only hope and joy, at least until three years ago. At some point in 2019, his health began to raise big questions for his parents. Arriving with him at the hospital, they found out that he was suffering from a rare disease.
Teo has muscular dystrophy. His muscles are deprived of a protein that supports them and over time they will no longer work. At the moment, he is moving more and more difficult, he does not manage to climb the stairs himself, says the boy's father, Gabriel Radu.
And he and his wife, Iulia, sought solutions everywhere, both at home and abroad. This is how they found out about the "Sant Joan de Déu" Hospital in Spain, where Teodor can benefit from a set of more in-depth analyzes and specialized recovery. But they all cost too much compared to what a driver and a teacher can afford. They need 10,000 euros only for the initial investigations, given that together the two spouses have incomes of only 5,500 lei.
The results of those who ended up in that hospital are very good. All our hope lies in the doctors there, but especially in the people who will help us through donations to be able to offer our son a better life, wrote teodor's mother, Iulia Radu.
Muscular dystrophy is a terrifying disease, which none of us even wants to hear about, let alone feel it on his own skin... As the condition progresses, the patient's movements become more and more difficult, and in some cases complications can occur in the heart that can threaten his life. In the same situation can be theodore, if he will not get help to go to Spain for treatment. Basically, we are his only chance at a life as free as possible from the effects of the terrible genetic disease. Any donation made in the accounts of the Association "Save a Heart" means extra force for this boy, the necessary force to fight dystrophy, to delay its effects, to slow down as much as possible the progression of the disease. Yes, there is still no healing, but we cannot be indifferent to the torment that will spoil the youth and the whole life of this child. Together, through our donations, we can tip the balance in favor of Theodore!
For donations:
Name entity: Association "SAVE A HEART"
Tax registration code: 31015982
RON account: RO05BTRL00701205W82870XX
EUR account: RO28BTRLEURCRT00W8287001
USD account : RO68BTRLUSDCRT00W8287001
SWIFT code : BTRLRO22
BIC code : BTRL
Banca Transilvania Botoşani
Please specify in the bank transfer, at the payment details, the name Teodor Radu!